Clinical Patient Management -ERNs

OpenApp in collaboration with DG Sante and the European Commission have developed software to provide a breakthrough for rare and low prevalence disease care throughout Europe.

IMG_3109

Project Details

European Reference Networks (ERNs) are virtual networks bringing together healthcare providers across Europe to tackle complex or rare medical conditions that require highly specialised treatment and a concentration of knowledge and resources. They are being set up under the EU Directive on Patients’ Rights in Healthcare (2011/24/EU), which also makes it easier for patients to access information on healthcare and thus increase their treatment options. In practice, ERNs will develop new innovative care models, eHealth tools, medical solutions and devices.

They will boost research through large clinical studies and contribute to the development of new pharmaceuticals, and they will lead to economies of scale and ensure a more efficient use of costly resources, which will have a positive impact on the sustainability of national healthcare systems, and for tens of thousands of patients in the EU suffering from rare and/or complex diseases and conditions.

CPMS-ERNs

Latest News

Clinical Patient Management System for European Reference Networks: A Case Study

Clinical Patient Management System for European Reference Networks: A Case Study The Clinical Patient Management System (CPMS) is a virtual consultation platform which enables healthcare professionals to present patient cases and collaborate with other healthcare professionals to provide diagnosis, care and treatment across borders. What are the European Reference Networks?…

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Digital and Central: Treat rare diseases through digital networking across institutions

Knowledge sharing at the Centre for Digitisation in telemedicine, germany and discussing CPMS OpenApp CEO, Con Hennessey, has been invited to speak about the Clinical Patient Management System (CPMS) at a the “Digital and central: Treat rare diseases through digital networking across institutions” online symposium.  Launched in 2017, CPMS serves as…

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OpenApp Develops Ground Breaking Platform Which Delivers Better Care to Rare Disease Patients

OpenApp Develops Ground Breaking Platform Which Delivers Better Care to Rare Disease Patients European clinicians treating over 30 million people who suffer from rare and complex diseases are reaping the benefits of pan-European cooperation. A new system developed by Irish health informatics company OpenApp for the European Commission now allows…

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ADDRESS

Avoca House,

189-193 Parnell Street,

Ireland.

D01 H578

 

 

EMAIL

PHONE

Irish Number:

+353 (1) 872 9331

US Number:

+1 (914) 455-0216

OpenApp are delighted to announce that we will be attending the 11th ECRD conference, the largest patient-led rare disease conference. We hope to see you there!#ecrd2022

Considering a registry? But struggling with where to start and what to consider? Here's an article penned by OpenApp's CEO and Head of Business Development that sheds light on the common misconceptions about starting a registry:http://bit.ly/Myths-Facts

"Patients should be the center of everything instead of the compound" - Christopher U. Missling, PhD. #MondayMotivation #RareDisease

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