Clinical Patient Management -ERNs

OpenApp in collaboration with DG Sante and the European Commission have developed software to provide a breakthrough for rare and low prevalence disease care throughout Europe.

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Project Details

European Reference Networks (ERNs) are virtual networks bringing together healthcare providers across Europe to tackle complex or rare medical conditions that require highly specialised treatment and a concentration of knowledge and resources. They are being set up under the EU Directive on Patients’ Rights in Healthcare (2011/24/EU), which also makes it easier for patients to access information on healthcare and thus increase their treatment options. In practice, ERNs will develop new innovative care models, eHealth tools, medical solutions and devices.

They will boost research through large clinical studies and contribute to the development of new pharmaceuticals, and they will lead to economies of scale and ensure a more efficient use of costly resources, which will have a positive impact on the sustainability of national healthcare systems, and for tens of thousands of patients in the EU suffering from rare and/or complex diseases and conditions.

Latest News

Clinical Patient Management System for European Reference Networks: A Case Study

Clinical Patient Management System for European Reference Networks: A Case Study The Clinical Patient Management System (CPMS) is a virtual consultation platform which enables healthcare professionals to present patient cases and collaborate with other healthcare professionals to provide diagnosis, care and treatment across borders. What are the European Reference Networks?…

Digital and Central: Treat rare diseases through digital networking across institutions

Knowledge sharing at the Centre for Digitisation in telemedicine, germany and discussing CPMS OpenApp CEO, Con Hennessey, has been invited to speak about the Clinical Patient Management System (CPMS) at a the “Digital and central: Treat rare diseases through digital networking across institutions” online symposium. Launched in 2017, CPMS serves as…

OpenApp Develops Ground Breaking Platform Which Delivers Better Care to Rare Disease Patients

OpenApp Develops Ground Breaking Platform Which Delivers Better Care to Rare Disease Patients European clinicians treating over 30 million people who suffer from rare and complex diseases are reaping the benefits of pan-European cooperation. A new system developed by Irish health informatics company OpenApp for the European Commission now allows…

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Avoca House,

189-193 Parnell Street,

Ireland.

D01 H578

EMAIL

enquiries@openapp.ie

PHONE

+353 (01) 872 9331

Avatar Openapp @OpenappIreland·

18 May

Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

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Avatar Openapp @OpenappIreland·

17 May

A standout first session today at the #RareDiseaseSummit2022 with Amanda Moore from @angelman and @ellabalasa1, CF advocate.

There are clearly many opportunities, as well as challenges, in investing in partnerships between patient orgs and industry. #RareDisease #registry

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Avatar Openapp @OpenappIreland·

17 May

We are delighted to be virtually attending the Rare Disease Innovation & Partnering Summit 2022!

Connect with @ConHennessy on the summit platform and learn how we support our patient organisation and industry clients in creating stronger partnerships!
https://informaconnect.com/rare-disease-summit/

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Avatar Openapp @OpenappIreland·

4 May

Such a great session! We are delighted our representatives could attend and discuss ways industry can support the rare disease community.

Rare Diseases Europe@eurordis

A new rare disease ecosystem in Europe relies on the engagement of all stakeholders.

Over 1️⃣0️⃣0️⃣ people have met at the @eurordis Round Table of Companies to discuss industry's role in laying the ground for an Action Plan on #RareDiseases to address unmet medical needs.

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Avatar Openapp @OpenappIreland·

28 Mar

OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. Learn more: https://bit.ly/3IF8fLn @ChildrensTumor #patientregistry

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