Patient Registries
OpenApp has developed a number of patient registries for rare and chronic diseases. While all diseases have their own requirements and nuances, they have a common need to asses patient care, improve care pathways and encourage research to further understand their disease and perhaps, undergo clinical trials. OpenApp’s flexible platform supports end to end requirements.
Patient Registry Features
- Smart Data Collection
- Error checking and validations
- eCRF
- Patient Portal
- Clinical Portal
- Electronic case book sign off
- Data Management Portal
- Reports
- Dashboards
- Data Analytics
- Data Export & Import
- Query Builder
- Audit Trail - every action logged
- Patient Reported Outcome Measures (PROMs)
- Studies & Cohorts
- Data Verification
Latest News
Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation
Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation Data protection is an issue that we regularly discuss with clinicians, clients, patient registry owners and healthcare organisations. And it’s with data protection in mind that we put this article together. If you are designing a registry,…
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OpenApp Takes Part in Epidermolysis Bullosa/ERN Registry Meeting
OpenApp Takes Part in Epidermolysis Bullosa/ERN Registry Meeting OpenApp is delighted to take part in an ERN Working Group on Wednesday, 8th June. Representatives from all over Europe will converge in Dublin as part of the proposed ERN for Rare and Undiagnosed Skin Diseases to discuss creating a collaborative…
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OpenApp Inspire and Inform at Health Conferences
Clinical Patient Management System for European Reference Networks: A Case Study Over the past couple of weeks, some of the team here have been attending, exhibiting and speaking at various Health & Rare Disease conferences. eHealth Ireland Ecosystem Our MD Mel McIntyre gave an update at the eHealth Ireland Ecosystem…
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OpenApp is now hiring a Sr. Application Developer! Head to our website for more information and instructions to apply. https://www.openapp.ie/careers-at-openapp/frontend-developer-opportunity/
Our CEO, @ConHennessy, will be speaking about the Clinical Patient Management System (CPMS) next week at a the “Digital and Central: Treat rare diseases through digital networking across institutions” symposium. Learn more and register: https://bit.ly/3dfOptg #telemedicine
We have been building open source solutions for 18 years. #TBT to an interview of the late Mel McIntyre who founded OpenApp with the belief that “[open source] will help to remove the economic barriers to scalability and lead to more opportunities.” https://bit.ly/3g9BGup
#TBT to the Open Source & Ireland's Innovation Ecosystem panel discussion. We have been providing open source solutions for the past 20 years, and discuss some of our insights with other Open Source leaders in Ireland here: https://youtu.be/Z9IzNOzSuEc #opensourceireland #innovation
In support of #RareDiseaseDay2021, practice your cooking skills and #RaiseAToastie for Rare Disease awareness today! #raredisease #patientregistries
Today’s the day! #RaiseAToastie #RareDiseaseDay
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