Patient Registries
OpenApp has developed a number of patient registries for rare and chronic diseases. While all diseases have their own requirements and nuances, they have a common need to assess patient care, improve care pathways and encourage research to further understand their disease and perhaps, undergo clinical trials. OpenApp’s flexible platform supports end-to-end requirements.
Core Patient Registry Features
- Collect and Manage Flexible Patient Data Sets
- Examples include demographic data, medical history, genetic profiles, diagnostic report, medication, adverse events, and more.
- Suitable for Natural History and Observational Studies
- Migrate Existing Data Sources
- Multilingual Options
- GDPR Compliant Platform
Clinical Reported Data for Healthcare Professionals
- Electronic Case Report Forms (eCRF)
- Enrollment and Baseline Forms
- Encounter and Follow-up Forms
- Patient Reported Outcome Measures (PROMs)
- Configure Access By Clinical Centre
- Healthcare Professional Dashboards
Patient Reported Data for Patient Organizations
- Participant (Self-)Enrollment
- Customise Consent. For example by registry participation, trial contact, contribute anonymously to research
- Scheduled Surveys
- Segment by Patient Cohort
- Email Communications by Cohort
- Registry Manager Dashboards
Research Study Manager Features
- Audit Trails
- Discrepancy Notes
- Freeze and Lock Data
- Report Query Builder
- Adhoc and Pre-Configured Query Reports
- Data Export (.csv, excel, CDISC)
Latest News
Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality
Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. This new enhancement provides access to the registry…
Read More
European Cystic Fibrosis Society Share Their Registry Experience
European cystic fibrosis society share their registry experience The European Cystic Fibrosis Society Patient Registry (ECFSPR) is one of OpenApp’s more mature registries having first been developed in 2012. It has grown exponentially through the continued work of both the European Cystic Fibrosis Society (ECFS) and OpenApp and currently accommodates…
Read More
OpenApp Featured in Rare Revolution Magazine: Patient Registries – Myth vs Fact
OpenApp Featured in Rare Revolution Magazine: Patient Registries – Myth vs Fact 04.02.2021 Clinical Patient Management System for European Reference Networks: A Case Study We are delighted to inform you that we have featured in one of the foremost publications in the rare disease space. In the Autumn 2020 issue…
Read MoreADDRESS
Avoca House,
189-193 Parnell Street,
Ireland.
D01 H578
Just over a week to go until the Irish Healthcare Awards @HealthAwardsIrl OpenApps' projects in collaboration with the HSE are in the running for "Best Use of Information Technology" & "Public Health Initiative of the Year" 🤞https://www.openapp.ie/openapp-projects-in-collaboration-with-the-hse-shortlisted-for-irish-health-awards-2022/ #IMTIHA22
We are thrilled to hear 2 of our recent projects with the HSE National Health Intelligence Unit (NHIU) have been shortlisted for this years Irish Healthcare Awards! We wish the best of luck to all nominees on the night!
We are delighted to reveal the 2022 Irish Healthcare Awards shortlist!
Find out below who is in the running to pick up one of our coveted awards on Thursday 1 December at the new Dublin Royal Convention Centre, Dublin 8.
Congratulations to all! #IMTIHA22
http://bit.ly/IHA22-shortlist
Thank you to all of our speakers, attendees, and staff for a great first day of the #NORDSummit! We look forward to learning, networking, and discussing important #RareDisease topics together again tomorrow.
"Partnerships with patients and patient advocacy groups increase #DrugDevelopment success."
- @KreherNerissa (@entradatx) at the #NORDSummit
Copyright © 2022 OpenApplications All rights reserved.
OpenApplications Consulting Ltd. Registered in Ireland No. 355595