Catch the latest news relating to OpenApp here. This page is dedicated to Informative blogs covering such topics as the steps to set up a registry, importance of real world data, Resources to find out more about our products and how they can serve you, And our News section so you can see keep up to date with OpenApp’s press coverage
Real-World Data Collection Enables Evaluating the Safety and Effectiveness of Treatments for Spinal Muscular Atrophy
This exciting initiative combines collecting real-world patient data by neurologists, clinicians and patients to enable clinical research and engagement of spinal muscular atrophy patients receiving treatment.
SMArtCARE is a multi-year joint initiative of neurologists, paediatricians, and patients with spinal muscular atrophy (SMA). Spinal muscular atrophy refers to a group of rare genetic diseases resulting in muscle wastage and weakness. Symptom onset can be seen in both children and adults but the most severe form typically presents in children under 18 months old. Until recent treatments survival past childhood was unusual.Read More
The NF registry is a one of a kind project, where the OpenApp team worked in collaboration with CTF to develop and support a platform that meets their requirements, as a secure and effective tool to empower NF patients and their caregivers. A dedicated registry is the most efficient way to raise awareness/advocate for NF, expand the NF community, and connect to help end NF.Read More
Combining the development efforts and the ongoing maintenance of your software is key to ensuring that you have a robust and constantly improving and evolving solution.
Having a software maintenance plan is just as important as the initial development. Professionally managed maintenance allows for the continual improvement and adaptation to changing business needs and technological advancements.Read More
GDPR stands for General Data Protection Regulation. First brought into effect in 2018, all businesses have been affected by the EU regulation worldwide. In this article, we will highlight what the regulation entails, key terms/items from the legislation, it’s importance in the modern world, how it measures up against other regulations and finally, how we as a company ensure our compliance.Read More
To celebrate Rare Disease Day 2023, which takes place on the 28th of February, we are changing our colours and showing our support for the Metachromatic Leukodystrophy Disease (MLD) Support Association UK. OpenApp have been working MLD support Association UK for many years under our Rare100 CSR scheme, a Corporate Social Responsibility (CSR) initiative run in 2018.Read More
OpenApp are delighted to announce that we have now attained ISO27001 certification through a huge amount of collaborative effort by our team. This has been a goal of the company for many years, we have always strived to provide the most secure systems and services so achieving this accreditation is a massive affirmation of the work the team has been continuously doing over the years……Read More
Egis Road & Tunnel Operations (ERTO) is the operating agent responsible for managing, recording, and reporting all incidents across the over 1,200 kilometres of motorway and dual carriageways in Ireland. They do this at the Motorway Operations Control Centre (MOCC)…Read More
OpenApp project in collaboration with the HSE wins Public Health Initiative of the year award at the Irish Healthcare Awards 2022 Now in its 21st year, the Irish Medical…Read More
Using Geolocation Data To Assess Changing Population Needs From Anecdotal to Geolocation Decision Concerned that their intervention was no longer required where service sites were situated, a national charity…Read More