ECFSTracker goes live!

ECFS

OpenApp’s Cystic Fibrosis customization of our Clinical Insight Platform was officially launched at the European Cystic Fibrosis Society’s Winter Meeting. Held in the pretty city of Leuven, Belgium on Thursday, January 25th. The meeting brought together members from over twenty European Nations.

Kevin Gill (lead developer) and Fiona Aherne (project manager) of the CF Clinical Insight platform travelled to Belgium for the launch and training of European National Registries co-ordinators and CF centre co-ordinators. Only two sessions were required to train across national registry and centre training, incorporating members across twenty three nations.

ECFSTracker will collect and report anonymised patient data right across twenty three countries (additional countries preparing to join the registry), improving patient monitoring and care. Additionally the platform will allow each patients encounter at their CF centre to be monitored and tracked, with helpful patient charts to interact and discuss progress between doctor and patient.

During the winter meeting, Dr Ed McKone (St Vincents University Hospital, Ireland) officially took over from Dr Hanne Olesen (Aarhus University Hospital, Denmark) as Executive Director of the ECFS Patient Registry. OpenApp would like to extend their best wishes and thanks to both, along with the extended project team for their continued clinical leadership of the project.

For more information to develop a customization for your registry organisation or chronic disease, contact fiona.aherne@openapp.ie

This article was published by Fiona Aherne

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OpenApp are delighted to announce that we will be attending the 11th ECRD conference, the largest patient-led rare disease conference. We hope to see you there!#ecrd2022

Considering a registry? But struggling with where to start and what to consider? Here's an article penned by OpenApp's CEO and Head of Business Development that sheds light on the common misconceptions about starting a registry:http://bit.ly/Myths-Facts

"Patients should be the center of everything instead of the compound" - Christopher U. Missling, PhD. #MondayMotivation #RareDisease

#happybirthday to us! This year marks OpenApp's 20th anniversary! We want to extend a big thank you to all of our partners for allowing us grow and develop into the organization we are today.
To learn more on our journey and goals for the future,visit:https://www.openapp.ie/openapp-celebrates-20th-anniversary/

Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

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