ERN CPMS Goes Live
There was much excitement among the European Reference Networks on November 20th as The European Commission DG Sante released the Clinical Patient Management System (CPMS).
The team here at OpenApp have been working really hard for the past 10 months on creating the virtual clinical platform that will help change people's lives. Clinicians now have a secure platform in which to share anonymised data with other specialists about their patients, host meetings online, look and comment on medical documents all within the platform.
Take a look at what the ERNs had to say:
ENDO -ERN wrote the “CPMS will realise one of the ERNs core tasks; bringing expert specialised care to all patients in Europe”.
ERNIthaca was the first ERN to open a panel for consultation in the new CPMS:
Vascern shared it on their website - The ERN Clinical Patient Management System (CPMS) is officially launched.
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To mark 20 years of CF data collection long time partners of ours @CFRegistryIE are hosting an event centred around patient registries. For those interested in the registry space it promises to be an informative event on a very topical subject within the rare disease industry.
To celebrate 20 years (& counting) of reporting @CFRegistryIE data, CFRI, alongside @HRCIreland, are hosting an event for those working in or with registries/are interested in developing #PatientRegistries in Ireland.
Check out more info & register here: https://www.eventbrite.co.uk/e/468480135697
An excellent Impact Report presented by NOCA Exec. Director Collette Tully, detailing the QOL of Patients post arthroplasty surgery benchmarked by country and the impact INOR has had on policy #NOCA2923 #NOCAIrl
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