How to Use the CPMS for Collaboration

If you are a Co-ordinator or Project Manager of a European Reference Network, you are invited to a virtual familiarisation webinar - How to Use the CPMS for Collaboration - to be held on Tuesday, 19th September at 3pm, CET.

Following the success of the first one, we decided to host another one for those that couldn't make it.

We want to help your ERN make the best use of the CPMS.

In this training, you'll learn how to:

Get started
How to enroll a patient
How to open a consultation request
how to follow a consultation request right through to closure.
We will show you step-by-step the process involved, from beginning to end, of a consultation request.

You'll discover the ease with which, you will be able to seek help and give help.

Click here to register for the Webinar.

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Avatar Openapp @OpenappIreland·

18 May

Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

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17 May

A standout first session today at the #RareDiseaseSummit2022 with Amanda Moore from @angelman and @ellabalasa1, CF advocate.

There are clearly many opportunities, as well as challenges, in investing in partnerships between patient orgs and industry. #RareDisease #registry

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17 May

We are delighted to be virtually attending the Rare Disease Innovation & Partnering Summit 2022!

Connect with @ConHennessy on the summit platform and learn how we support our patient organisation and industry clients in creating stronger partnerships!
https://informaconnect.com/rare-disease-summit/

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4 May

Such a great session! We are delighted our representatives could attend and discuss ways industry can support the rare disease community.

Rare Diseases Europe@eurordis

A new rare disease ecosystem in Europe relies on the engagement of all stakeholders.

Over 1️⃣0️⃣0️⃣ people have met at the @eurordis Round Table of Companies to discuss industry's role in laying the ground for an Action Plan on #RareDiseases to address unmet medical needs.

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Avatar Openapp @OpenappIreland·

28 Mar

OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. Learn more: https://bit.ly/3IF8fLn @ChildrensTumor #patientregistry

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