Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality

OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. This new enhancement provides access to the registry from a more diverse population and expands the reach of the registry.

The availability of more languages will allow participants to feel comfortable sharing data in their native languages and not have to navigate foreign terminology when discussing their conditions.

The combination of these new translations and existing registry features, such as participant surveys, registry management tools, and cohort email capabilities, have enabled CTF to grow the registry to over 10,000 participants.

french homepage patient registry survey platform

Our collaboration with CTF started in 2019 through the development of a registry allowing participants to contribute to NF research by sharing their own experiences as well as learn more about relevant clinical trials. Understanding the participant experience better to drive research and contribute to the advancement of care for the NF community has always been at the forefront of the CTF objectives. These added languages are another step towards growing the registry population, enabling CTF and their partners to have a greater impact on the fight to end NF.

If you want to hear more about our work and how we can support your registry goals please contact us.

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18 May

Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

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17 May

A standout first session today at the #RareDiseaseSummit2022 with Amanda Moore from @angelman and @ellabalasa1, CF advocate.

There are clearly many opportunities, as well as challenges, in investing in partnerships between patient orgs and industry. #RareDisease #registry

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17 May

We are delighted to be virtually attending the Rare Disease Innovation & Partnering Summit 2022!

Connect with @ConHennessy on the summit platform and learn how we support our patient organisation and industry clients in creating stronger partnerships!
https://informaconnect.com/rare-disease-summit/

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4 May

Such a great session! We are delighted our representatives could attend and discuss ways industry can support the rare disease community.

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A new rare disease ecosystem in Europe relies on the engagement of all stakeholders.

Over 1️⃣0️⃣0️⃣ people have met at the @eurordis Round Table of Companies to discuss industry's role in laying the ground for an Action Plan on #RareDiseases to address unmet medical needs.

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28 Mar

OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. Learn more: https://bit.ly/3IF8fLn @ChildrensTumor #patientregistry

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