The Children’s Tumor Foundation Patient Registry Goes Multilingual
Four Additional Languages
OpenApp are pleased to announce the NF Registry by Children’s Tumor Foundation (CTF) goes live in four additional languages: French, Italian, Portuguese and Spanish. This new enhancement provides access to the registry from a more diverse population and expands the reach of the registry.
The availability of more languages will allow participants to feel comfortable sharing data in their native languages and not have to navigate foreign terminology when discussing their conditions.
The combination of these new translations and existing patient registry software functionality such as participant surveys, registry management tools, and cohort email capabilities, have enabled the Children's Tumor Foundation to grow the registry to over 10,000 participants.
Our collaboration with the Children's Tumor Foundation started in 2019 through the development of the NF patient registry allowing participants to contribute to NF research by sharing their own experiences as well as learn more about relevant clinical trials. Understanding the participant experience better to drive research and contribute to the advancement of care for the NF community has always been at the forefront of the CTF objectives. These added languages are another step towards growing the registry population, enabling the Children's Tumor Foundation and their partners to have a greater impact on the fight to end NF.
Find out how we can support your real-world data collection and other patient registry goals by contacting us.
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