Last week the Client Engagement team and MD Con Hennessy attended World Orphan Drug Congress in Barcelona, Spain.



Now in its 10th year, WODC has become one of the largest and well-established events on rare diseases and orphan drugs within Europe, catering for patient advocacy groups, regulators, and industry from across the continent.

Con Hennessy, our MD was invited to give a talk about “Ingredients for a Successful International Registry” on Day two of the Congress.

The first day of the conference passed by in a blur of activity. As this was our first year exhibiting, it enabled us to have lots of conversations with new friends and virtual friends which we know from Twitter.

So many people stopped by our stand, attracted by our new colours and messaging. It was great to be able to share with individuals and organisations our work on patient registries, clinical registries and pharma-sponsored registries. We gave demonstrations of our software so people could really see for themselves how robust our platform truly is.

(If you missed a demonstration and would like to see it for yourself, please get in touch with us).

Day two began like day one - busy with conversations. Only on Day 2, Con took to the stage where he outlined three key areas to get started when ‘Creating a Successful International Registry’.

He began with “Registries are patient stories translated into useful data” and spoke about having a vision of your registry, getting stakeholders involved right through to developing and sustaining a registry.

Over all, we had a super time at the Congress. We met old friends and made new ones.

If we didn’t get a chance to meet, please do not hesitate in contacting us. We’d love to hear from you.

Latest News

Logo for SMArtCARE a joint initiative for spinal muscle atrophy

Real-World Data Collection Enables Evaluating the Safety and Effectiveness of Treatments for Spinal Muscular Atrophy

16 August 2023

This exciting initiative combines collecting real-world patient data by neurologists, clinicians and patients to enable clinical research and engagement of spinal muscular atrophy patients receiving treatment.

SMArtCARE is a multi-year joint initiative of neurologists, paediatricians, and patients with spinal muscular atrophy (SMA). Spinal muscular atrophy refers to a group of rare genetic diseases resulting in muscle wastage and weakness. Symptom onset can be seen in both children and adults but the most severe form typically presents in children under 18 months old. Until recent treatments survival past childhood was unusual.

Read More
Childrens tumor foundation logo

Childrens Tumor Foundation Innovative Patient Reported Patient Registry Platform

23 June 2023

The NF registry is a one of a kind project, where the OpenApp team worked in collaboration with CTF to develop and support a platform that meets their requirements, as a secure and effective tool to empower NF patients and their caregivers. A dedicated registry is the most efficient way to raise awareness/advocate for NF, expand the NF community, and connect to help end NF.

Read More
Software Maintenance

Why You Need A Software Maintenance Management Plan

1 June 2023

Combining the development efforts and the ongoing maintenance of your software is key to ensuring that you have a robust and constantly improving and evolving solution.

Having a software maintenance plan is just as important as the initial development. Professionally managed maintenance allows for the continual improvement and adaptation to changing business needs and technological advancements.

Read More

IQVIA (NYSE:IQV) is a leading global provider of advanced analytics, technology solutions and contract research services to the life sciences industry dedicated to delivering actionable insights. Learn more at




Irish Number:

+353 (1) 872 9331

US Number:

+1 (914) 455-0216

Copyright © 2024 | Privacy Policy

OpenApplications Consulting Ltd. Registered in Ireland No. 355595