OpenApp Featured in Rare Revolution Magazine: Patient Registries - Myth vs Fact
Clinical Patient Management System for European Reference Networks: A Case Study
We are delighted to inform you that we have featured in one of the foremost publications in the rare disease space. In the Autumn 2020 issue of Rare Revolution magazine we delve into some frequently asked questions regarding registries and use our expertise to debunk commonly held misconceptions about setting up your own registry.
For many organisations setting up a registry can be a daunting endeavour, rife with uncertainty, from engaging and aligning stakeholders to assessing cost and securing funding. In our 10 years of experience supporting clinical data collection, we have heard and addressed many of these same concerns.
So if you find yourself or your colleagues questioning whether a registry will “cost us millions”, or perhaps you’re more concerned about the perceived complexity in establishing a registry, set aside some time to read this short article where we address many of your issues.
Check it out: http://bit.ly/Myths-Facts
To keep up to date with all things Patient Registry, please follow us on twitter @OpenAppIreland
Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality
Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. This new enhancement provides access to the registry…Read More
European cystic fibrosis society share their registry experience The European Cystic Fibrosis Society Patient Registry (ECFSPR) is one of OpenApp’s more mature registries having first been developed in 2012. It has grown exponentially through the continued work of both the European Cystic Fibrosis Society (ECFS) and OpenApp and currently accommodates…Read More
Multi agency toolkit, incident management and location coordination What is AeroMedical? The Aero-Medical module is a custom software application developed by OpenApp which is used by the Health Service Executive (HSE) Aero-Medical Services, the Air Corps and the Irish Coast Guard . It consists of user-interface/screens showing real-time availability of…Read More