OpenApp Featured in Rare Revolution Magazine: Patient Registries - Myth vs Fact

04.02.2021

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Clinical Patient Management System for European Reference Networks: A Case Study
We are delighted to inform you that we have featured in one of the foremost publications in the rare disease space. In the Autumn 2020 issue of Rare Revolution magazine we delve into some frequently asked questions regarding registries and use our expertise to debunk commonly held misconceptions about setting up your own registry.

For many organisations setting up a registry can be a daunting endeavour, rife with uncertainty, from engaging and aligning stakeholders to assessing cost and securing funding. In our 10 years of experience supporting clinical data collection, we have heard and addressed many of these same concerns.

So if you find yourself or your colleagues questioning whether a registry will “cost us millions”, or perhaps you’re more concerned about the perceived complexity in establishing a registry, set aside some time to read this short article where we address many of your issues.

Check it out: http://bit.ly/Myths-Facts

To keep up to date with all things Patient Registry, please follow us on twitter @OpenAppIreland

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Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

A standout first session today at the #RareDiseaseSummit2022 with Amanda Moore from @angelman and @ellabalasa1, CF advocate.

There are clearly many opportunities, as well as challenges, in investing in partnerships between patient orgs and industry. #RareDisease #registry

We are delighted to be virtually attending the Rare Disease Innovation & Partnering Summit 2022!

Connect with @ConHennessy on the summit platform and learn how we support our patient organisation and industry clients in creating stronger partnerships!
https://informaconnect.com/rare-disease-summit/

OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. Learn more: https://bit.ly/3IF8fLn @ChildrensTumor #patientregistry

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