Con Hennessy Interview With Rare Revolution Magazine

Con Hennessy Interview with Rare Revolution Magazine

09.10.2020

We are delighted to announce that our CEO, Con Hennessy, has been featured in esteemed rare disease publication Rare Revolution, in their “The People of Rare: CEO Series” campaign.The Rare Revolution “People of Rare” campaign aims to provide a glimpse into what drives the leaders of various RARE communities and some of the industry’s most influential organisations. In Con’s interview, he opens up on a variety of topics such as his path to working in the rare disease space, the challenging and rewarding aspects of his position and what motivates him to continue to make a difference.

The interview is available on the Rare Revolution Magazine website: https://www.rarerevolutionmagazine.com/ceo-series/con-hennessy-of-openapp

“We firmly believe in the merit of registries as a means for organisations dealing with rare disease to bolster community engagement with researchers, advance support of treatments, assess drug efficacy/safety and longitudinal data collection.” - Con Hennessy

Latest News

Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality

25 March 2022

Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. This new enhancement provides access to the registry…

European Cystic Fibrosis Society Share Their Registry Experience

22 March 2022

European cystic fibrosis society share their registry experience The European Cystic Fibrosis Society Patient Registry (ECFSPR) is one of OpenApp’s more mature registries having first been developed in 2012. It has grown exponentially through the continued work of both the European Cystic Fibrosis Society (ECFS) and OpenApp and currently accommodates…

image showing an ambulance in the foreground and a coast guard helicopter in the near distance

AeroMedical, Saving Lives With Location Data

21 January 2022

Multi agency toolkit, incident management and location coordination What is AeroMedical? The Aero-Medical module is a custom software application developed by OpenApp which is used by the Health Service Executive (HSE) Aero-Medical Services, the Air Corps and the Irish Coast Guard . It consists of user-interface/screens showing real-time availability of…

ADDRESS

Avoca House,

189-193 Parnell Street,

Ireland.

D01 H578

EMAIL

enquiries@openapp.ie

PHONE

+353 (01) 872 9331

Avatar Openapp @OpenappIreland·

18 May

Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

Reply on Twitter 1526854695729364994 Retweet on Twitter 1526854695729364994 Like on Twitter 1526854695729364994 Twitter 1526854695729364994

Avatar Openapp @OpenappIreland·

17 May

A standout first session today at the #RareDiseaseSummit2022 with Amanda Moore from @angelman and @ellabalasa1, CF advocate.

There are clearly many opportunities, as well as challenges, in investing in partnerships between patient orgs and industry. #RareDisease #registry

Reply on Twitter 1526563478068252672 Retweet on Twitter 15265634780682526723 Like on Twitter 15265634780682526727 Twitter 1526563478068252672

Avatar Openapp @OpenappIreland·

17 May

We are delighted to be virtually attending the Rare Disease Innovation & Partnering Summit 2022!

Connect with @ConHennessy on the summit platform and learn how we support our patient organisation and industry clients in creating stronger partnerships!
https://informaconnect.com/rare-disease-summit/

Reply on Twitter 1526552277502369793 Retweet on Twitter 15265522775023697931 Like on Twitter 15265522775023697931 Twitter 1526552277502369793

Avatar Openapp @OpenappIreland·

4 May

Such a great session! We are delighted our representatives could attend and discuss ways industry can support the rare disease community.

Rare Diseases Europe@eurordis

A new rare disease ecosystem in Europe relies on the engagement of all stakeholders.

Over 1️⃣0️⃣0️⃣ people have met at the @eurordis Round Table of Companies to discuss industry's role in laying the ground for an Action Plan on #RareDiseases to address unmet medical needs.

Reply on Twitter 1521854282953281537 Retweet on Twitter 1521854282953281537 Like on Twitter 15218542829532815371 Twitter 1521854282953281537

Avatar Openapp @OpenappIreland·

28 Mar

OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. Learn more: https://bit.ly/3IF8fLn @ChildrensTumor #patientregistry

Reply on Twitter 1508386930593046530 Retweet on Twitter 1508386930593046530 Like on Twitter 1508386930593046530 Twitter 1508386930593046530

OpenApplications Consulting Ltd. Registered in Ireland No. 355595