Con Hennessy Interview with Rare Revolution Magazine
09.10.2020

We are delighted to announce that our CEO, Con Hennessy, has been featured in esteemed rare disease publication Rare Revolution, in their “The People of Rare: CEO Series” campaign.The Rare Revolution “People of Rare” campaign aims to provide a glimpse into what drives the leaders of various RARE communities and some of the industry’s most influential organisations. In Con’s interview, he opens up on a variety of topics such as his path to working in the rare disease space, the challenging and rewarding aspects of his position and what motivates him to continue to make a difference.
The interview is available on the Rare Revolution Magazine website: https://www.rarerevolutionmagazine.com/ceo-series/con-hennessy-of-openapp
“We firmly believe in the merit of registries as a means for organisations dealing with rare disease to bolster community engagement with researchers, advance support of treatments, assess drug efficacy/safety and longitudinal data collection.” - Con Hennessy
Latest News
Software Maintenance Management Planning
Combining the development efforts and the ongoing maintenance of your software is key to ensuring that you have a robust and constantly improving and evolving solution.
Having a software maintenance plan is just as important as the initial development. Professionally managed maintenance allows for the continual improvement and adaptation to changing business needs and technological advancements.
Read MorePatient Registry Data and General Data Protection Regulation
GDPR stands for General Data Protection Regulation. First brought into effect in 2018, all businesses have been affected by the EU regulation worldwide. In this article, we will highlight what the regulation entails, key terms/items from the legislation, it’s importance in the modern world, how it measures up against other regulations and finally, how we as a company ensure our compliance.
Read MoreOpenApp supports Metachromatic Leukodystrophy Disease MLD Research
To celebrate Rare Disease Day 2023, which takes place on the 28th of February, we are changing our colours and showing our support for the Metachromatic Leukodystrophy Disease (MLD) Support Association UK. OpenApp have been working MLD support Association UK for many years under our Rare100 CSR scheme, a Corporate Social Responsibility (CSR) initiative run in 2018.
Read MoreADDRESS
Avoca House,
189-193 Parnell Street,
Ireland.
D01 H578
Copyright © 2023 OpenApplications All rights reserved.
OpenApplications Consulting Ltd. Registered in Ireland No. 355595