Con Hennessy Interview with Rare Revolution Magazine

09.10.2020

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We are delighted to announce that our CEO, Con Hennessy, has been featured in esteemed rare disease publication Rare Revolution, in their “The People of Rare: CEO Series” campaign.The Rare Revolution “People of Rare” campaign aims to provide a glimpse into what drives the leaders of various RARE communities and some of the industry’s most influential organisations. In Con’s interview, he opens up on a variety of topics such as his path to working in the rare disease space, the challenging and rewarding aspects of his position and what motivates him to continue to make a difference.

The interview is available on the Rare Revolution Magazine website: https://www.rarerevolutionmagazine.com/ceo-series/con-hennessy-of-openapp

“We firmly believe in the merit of registries as a means for organisations dealing with rare disease to bolster community engagement with researchers, advance support of treatments, assess drug efficacy/safety and longitudinal data collection.” - Con Hennessy

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Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

A standout first session today at the #RareDiseaseSummit2022 with Amanda Moore from @angelman and @ellabalasa1, CF advocate.

There are clearly many opportunities, as well as challenges, in investing in partnerships between patient orgs and industry. #RareDisease #registry

We are delighted to be virtually attending the Rare Disease Innovation & Partnering Summit 2022!

Connect with @ConHennessy on the summit platform and learn how we support our patient organisation and industry clients in creating stronger partnerships!
https://informaconnect.com/rare-disease-summit/

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