We are delighted to announce that our CEO, Con Hennessy, has been featured in esteemed rare disease publication Rare Revolution, in their “The People of Rare: CEO Series” campaign.The Rare Revolution “People of Rare” campaign aims to provide a glimpse into what drives the leaders of various RARE communities and some of the industry’s most influential organisations.In Con’s interview, he opens up on a variety of topics such as his path to working in the rare disease space, the challenging and rewarding aspects of his position and what motivates him to continue to make a difference.

The interview is available on the Rare Revolution Magazine website: https://www.rarerevolutionmagazine.com/ceo-series/con-hennessy-of-openapp

“We firmly believe in the merit of registries as a means for organisations dealing with rare disease to bolster community engagement with researchers, advance support of treatments, assess drug efficacy/safety and longitudinal data collection.” – Con Hennessy