Con Hennessy Interview with Rare Revolution Magazine



We are delighted to announce that our CEO, Con Hennessy, has been featured in esteemed rare disease publication Rare Revolution, in their “The People of Rare: CEO Series” campaign.The Rare Revolution “People of Rare” campaign aims to provide a glimpse into what drives the leaders of various RARE communities and some of the industry’s most influential organisations. In Con’s interview, he opens up on a variety of topics such as his path to working in the rare disease space, the challenging and rewarding aspects of his position and what motivates him to continue to make a difference.

The interview is available on the Rare Revolution Magazine website:

“We firmly believe in the merit of registries as a means for organisations dealing with rare disease to bolster community engagement with researchers, advance support of treatments, assess drug efficacy/safety and longitudinal data collection.” - Con Hennessy

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