The Rare Disease Puzzle: Bringing the Picture to Life

ecrd

 

OpenApp are pleased to be attending the 2014 European Rare Disease Conference, Berlin 8th-10th May.

The fact is that while a disease might be labeled as “rare”, the number of persons in Europe suffering from a rare disease is estimated at over 30 million. Rare diseases do not only affect those diagnosed, but their families, friends, carers and society as a whole. While one rare disease may affect as few as 1 in 50,000 people, rare disease patients collectively comprise 6 to 8 % of the EU population. These statistics do not seem as comforting.

The European Conference on Rare Diseases and Orphan Products is rare. It is the one event where everyone from patients, to policy makers, healthcare professionals, industry, payers, regulators, researchers and academics are given the opportunity to meet, exchange information and ideas and join together in the fight against rare diseases. This event provides a unique platform comprising all rare diseases, across all European nations. With over 100 speakers and countless professionals in attendance, this biennial conference covers the latest research, developments in new treatments and information regarding innovations in health care, social care and support at both the European and national levels.

Why are OpenApp attending?
OpenApp's Clinical Insight platform can allow some of the 4,000 rare diseases to improve their patient monitoring, pharmacovigilance and reporting among their patient cohort.

 

View the conference website: rare-diseases.eu

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ADDRESS

Avoca House,

189-193 Parnell Street.

Dublin 1, Ireland.

D01 H578

OpenApp is now hiring an enthusiastic self-starter to join a growing sales and marketing team in Dublin as a Senior Marketing and Business Development Representative! Details on the role and how to apply can be found here: https://www.openapp.ie/careers/senior-marketing-and-business-development-representative/

OpenApp is now hiring a Sr. Application Developer! Head to our website for more information and instructions to apply. https://www.openapp.ie/careers-at-openapp/frontend-developer-opportunity/

Our CEO, @ConHennessy, will be speaking about the Clinical Patient Management System (CPMS) next week at a the “Digital and Central: Treat rare diseases through digital networking across institutions” symposium. Learn more and register: https://bit.ly/3dfOptg #telemedicine

We have been building open source solutions for 18 years. #TBT to an interview of the late Mel McIntyre who founded OpenApp with the belief that “[open source] will help to remove the economic barriers to scalability and lead to more opportunities.” https://bit.ly/3g9BGup

#TBT to the Open Source & Ireland's Innovation Ecosystem panel discussion. We have been providing open source solutions for the past 20 years, and discuss some of our insights with other Open Source leaders in Ireland here: https://youtu.be/Z9IzNOzSuEc #opensourceireland #innovation

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