The Rare Disease Puzzle: Bringing the Picture to Life

ecrd

 

OpenApp are pleased to be attending the 2014 European Rare Disease Conference, Berlin 8th-10th May.

The fact is that while a disease might be labeled as “rare”, the number of persons in Europe suffering from a rare disease is estimated at over 30 million. Rare diseases do not only affect those diagnosed, but their families, friends, carers and society as a whole. While one rare disease may affect as few as 1 in 50,000 people, rare disease patients collectively comprise 6 to 8 % of the EU population. These statistics do not seem as comforting.

The European Conference on Rare Diseases and Orphan Products is rare. It is the one event where everyone from patients, to policy makers, healthcare professionals, industry, payers, regulators, researchers and academics are given the opportunity to meet, exchange information and ideas and join together in the fight against rare diseases. This event provides a unique platform comprising all rare diseases, across all European nations. With over 100 speakers and countless professionals in attendance, this biennial conference covers the latest research, developments in new treatments and information regarding innovations in health care, social care and support at both the European and national levels.

Why are OpenApp attending?
OpenApp's Clinical Insight platform can allow some of the 4,000 rare diseases to improve their patient monitoring, pharmacovigilance and reporting among their patient cohort.

 

View the conference website: rare-diseases.eu

Latest News

OpenApp achieves ISO27001 Certification

23 December 2022

OpenApp are delighted to announce that we have now attained ISO27001 certification through a huge amount of collaborative effort by our team. This has been a goal of the company for many years, we have always strived to provide the most secure systems and services so achieving this accreditation is a massive affirmation of the work the team has been continuously doing over the years……

Read More
Screenshot of dashboard showing Traffic Incident Management System

Custom Traffic Incident Management System (TIMs)

24 November 2022

Egis Road & Tunnel Operations (ERTO) is the operating agent responsible for managing, recording, and reporting all incidents across the over 1,200 kilometres of motorway and dual carriageways in Ireland. They do this at the Motorway Operations Control Centre (MOCC)…

Read More
ISO27001

OpenApp project with the HSE wins Irish Health Awards 2022 for Public Health Initiative

1 November 2022

OpenApp project in collaboration with the HSE wins Public Health Initiative of the year award at the Irish Healthcare Awards 2022   Now in its 21st year, the Irish Medical Times has announced the winners of the 2022 Irish Healthcare Awards. Two projects evolved by OpenApp in collaboration with the…

Read More

ADDRESS

Avoca House,

189-193 Parnell Street,

Ireland.

D01 H578

 

 

EMAIL

PHONE

Irish Number:

+353 (1) 872 9331

US Number:

+1 (914) 455-0216

Great talk from Prof. Edward Gregg @noca_irl discussing the benefits of registries in intervention and effectiveness research #noca2023

An excellent Impact Report presented by NOCA Exec. Director Collette Tully, detailing the QOL of Patients post arthroplasty surgery benchmarked by country and the impact INOR has had on policy #NOCA2923 #NOCAIrl

2

Load More...

Copyright © 2022 OpenApplications All rights reserved.

OpenApplications Consulting Ltd. Registered in Ireland No. 355595