Want to know more about the ERNs?

On 1 March the newly established European Reference Networks (ERNs) began their work. ERNs are unique and innovative cross-border cooperation platforms between specialists for the diagnosis and treatment of rare or low prevalence complex diseases. 24 thematic ERNs, gathering over 900 highly specialised healthcare units from 26 countries, will begin working together on a wide range of issues, from bone disorders to haematological diseases, from paediatric cancer to immunodeficiency. Joining up of EU's best expertise on this scale should benefit every year thousands of patients with diseases requiring a particular concentration of highly specialised healthcare in medical domains where the expertise is rare. Visit The European Commission Health page for more information.

OpenApp is delighted to be the developer of the Clinical Patient Management System of the 24 ERNs, enabling secure online consultations with leading specialists across Europe. It is the first company to create a cross border health record exchange.

This video explains the purpose and power of the ERNs in a few small minutes. (It's also available in different languages).

Photo credit: Fenimore

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Avatar Openapp @OpenappIreland·

18 May

Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022 https://www.futurehealthsummit.com/

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Avatar Openapp @OpenappIreland·

17 May

A standout first session today at the #RareDiseaseSummit2022 with Amanda Moore from @angelman and @ellabalasa1, CF advocate.

There are clearly many opportunities, as well as challenges, in investing in partnerships between patient orgs and industry. #RareDisease #registry

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Avatar Openapp @OpenappIreland·

17 May

We are delighted to be virtually attending the Rare Disease Innovation & Partnering Summit 2022!

Connect with @ConHennessy on the summit platform and learn how we support our patient organisation and industry clients in creating stronger partnerships!
https://informaconnect.com/rare-disease-summit/

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Avatar Openapp @OpenappIreland·

4 May

Such a great session! We are delighted our representatives could attend and discuss ways industry can support the rare disease community.

Rare Diseases Europe@eurordis

A new rare disease ecosystem in Europe relies on the engagement of all stakeholders.

Over 1️⃣0️⃣0️⃣ people have met at the @eurordis Round Table of Companies to discuss industry's role in laying the ground for an Action Plan on #RareDiseases to address unmet medical needs.

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Avatar Openapp @OpenappIreland·

28 Mar

OpenApp are pleased to announce the NF Registry by Children’s Tumour Foundation (CTF) is now live in four additional languages: French, Italian, Portuguese and Spanish. Learn more: https://bit.ly/3IF8fLn @ChildrensTumor #patientregistry

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