OpenApp have been developing the new ECFS patient registry software, ECFSTracker in partnership with the ECFS Patient Registry steering group since March 2013. Since giving a preliminary demonstration and approach to the future design at the annual conference in Lisbon 2013, the project has progressed to training and roll out around Europe.
Throughout the three days, Mel and Fiona met with many users of ECFSTracker, and also new users who have decided to adopt the software for their local centre and national data collection and reporting tool. Some countries have also expressed a desire to extend the software within their own countries to collect local variables they wish to collect.
It was a pleasure to attend the conference, meeting with many pioneering researchers and medical professionals leading the way in Cystic Fibrosis.
Article published by Fiona Aherne, June 25th, 2014. For more information, please contact firstname.lastname@example.org