OpenApp attend ECFS 2014, Gothenburg

OpenApp attend ECFS 2014, Gothenburg

37th Annual European Cystic Fibrosis Society

OpenApp's Mel McIntyre and Fiona Aherne attended the recent 37th Annual European Cystic Fibrosis Society conference in Gothenburg.

OpenApp have been developing the new European Cystic Fibrosis Society patient registry software, ECFSTracker in partnership with the ECFS Patient Registry steering group since March 2013. Since giving a preliminary demonstration and approach to the future design in Lisbon 2013, the project has progressed to training and launch across Europe in early 2014.

Throughout the three days, Mel and Fiona met with many users of ECFSTracker, and also new users who have decided to adopt the software for their local centre and national data collection and reporting tool. Some countries have also expressed a desire to extend the software within their own countries to collect local variables they wish to collect.

It was a pleasure to attend the conference, meeting with many pioneering researchers and medical professionals leading the way in Cystic Fibrosis.

Learn more about the Clinical Insight Patient Registry  or start your registry journey here.


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Today is #rarediseaseday2023 a very important date for both Rare Disease Awareness and Advocacy! There are over 6000 known rare diseases today, affecting 300 million people around the world.


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