OpenApp attend ECFS 2014, Gothenburg

OpenApp attend ECFS 2014, Gothenburg
OpenApp's Mel McIntyre and Fiona Aherne attended the recent 37th Annual European Cystic Fibrosis Society conference in Gothenburg.

OpenApp have been developing the new ECFS patient registry software, ECFSTracker in partnership with the ECFS Patient Registry steering group since March 2013. Since giving a preliminary demonstration and approach to the future design at the annual conference in Lisbon 2013, the project has progressed to training and roll out around Europe.

Throughout the three days, Mel and Fiona met with many users of ECFSTracker, and also new users who have decided to adopt the software for their local centre and national data collection and reporting tool. Some countries have also expressed a desire to extend the software within their own countries to collect local variables they wish to collect.

It was a pleasure to attend the conference, meeting with many pioneering researchers and medical professionals leading the way in Cystic Fibrosis.

Article published by Fiona Aherne, June 25th, 2014. For more information, please contact

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OpenApp are delighted to announce that we will be attending the 11th ECRD conference, the largest patient-led rare disease conference. We hope to see you there!#ecrd2022

Considering a registry? But struggling with where to start and what to consider? Here's an article penned by OpenApp's CEO and Head of Business Development that sheds light on the common misconceptions about starting a registry:

"Patients should be the center of everything instead of the compound" - Christopher U. Missling, PhD. #MondayMotivation #RareDisease

#happybirthday to us! This year marks OpenApp's 20th anniversary! We want to extend a big thank you to all of our partners for allowing us grow and develop into the organization we are today.
To learn more on our journey and goals for the future,visit:

Back to in-person events, we are delighted to be face to face and learning from thought leaders across the Irish healthcare ecosystem at the Future Health Summit over the next 2 days! #FHsummit2022

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