OpenApp attend ECFS 2014, Gothenburg

OpenApp attend ECFS 2014, Gothenburg
OpenApp's Mel McIntyre and Fiona Aherne attended the recent 37th Annual European Cystic Fibrosis Society conference in Gothenburg.

OpenApp have been developing the new ECFS patient registry software, ECFSTracker in partnership with the ECFS Patient Registry steering group since March 2013. Since giving a preliminary demonstration and approach to the future design at the annual conference in Lisbon 2013, the project has progressed to training and roll out around Europe.

Throughout the three days, Mel and Fiona met with many users of ECFSTracker, and also new users who have decided to adopt the software for their local centre and national data collection and reporting tool. Some countries have also expressed a desire to extend the software within their own countries to collect local variables they wish to collect.

It was a pleasure to attend the conference, meeting with many pioneering researchers and medical professionals leading the way in Cystic Fibrosis.

Article published by Fiona Aherne, June 25th, 2014. For more information, please contact info@openapp.ie

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Just over a week to go until the Irish Healthcare Awards @HealthAwardsIrl OpenApps' projects in collaboration with the HSE are in the running for "Best Use of Information Technology" & "Public Health Initiative of the Year" 🤞https://www.openapp.ie/openapp-projects-in-collaboration-with-the-hse-shortlisted-for-irish-health-awards-2022/ #IMTIHA22

Very interesting comments by the FDA RWE panel today at #NORDSummit regarding the pros and cons of using #registry data vs. other sources of data for RWE studies. Registry data can be much higher in quality and accuracy but, at times, less efficient.

Thank you to all of our speakers, attendees, and staff for a great first day of the #NORDSummit! We look forward to learning, networking, and discussing important #RareDisease topics together again tomorrow.

"Partnerships with patients and patient advocacy groups increase #DrugDevelopment success."

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