OpenApp attend ECFS 2014, Gothenburg
37th Annual European Cystic Fibrosis Society
OpenApp have been developing the new European Cystic Fibrosis Society patient registry software, ECFSTracker in partnership with the ECFS Patient Registry steering group since March 2013. Since giving a preliminary demonstration and approach to the future design in Lisbon 2013, the project has progressed to training and launch across Europe in early 2014.
Throughout the three days, Mel and Fiona met with many users of ECFSTracker, and also new users who have decided to adopt the software for their local centre and national data collection and reporting tool. Some countries have also expressed a desire to extend the software within their own countries to collect local variables they wish to collect.
It was a pleasure to attend the conference, meeting with many pioneering researchers and medical professionals leading the way in Cystic Fibrosis.
Learn more about the Clinical Insight Patient Registry or start your registry journey here.
Latest News
OpenApp supports Metachromatic Leukodystrophy Disease MLD Research
To celebrate Rare Disease Day 2023, which takes place on the 28th of February, we are changing our colours and showing our support for the Metachromatic Leukodystrophy Disease (MLD) Support Association UK. OpenApp have been working MLD support Association UK for many years under our Rare100 CSR scheme, a Corporate Social Responsibility (CSR) initiative run in 2018.
Read More
OpenApp achieves ISO27001 Certification
OpenApp are delighted to announce that we have now attained ISO27001 certification through a huge amount of collaborative effort by our team. This has been a goal of the company for many years, we have always strived to provide the most secure systems and services so achieving this accreditation is a massive affirmation of the work the team has been continuously doing over the years……
Read More
Custom Traffic Incident Management System (TIMs)
Egis Road & Tunnel Operations (ERTO) is the operating agent responsible for managing, recording, and reporting all incidents across the over 1,200 kilometres of motorway and dual carriageways in Ireland. They do this at the Motorway Operations Control Centre (MOCC)…
Read MoreADDRESS
Avoca House,
189-193 Parnell Street,
Ireland.
D01 H578
We’re so happy with our video from the weekend @rarediseaseday event in Waterford courtesy of @TheArtHand music from Irish musician Banba
We will continue to raise awareness of rare diseases in Ireland & highlight the unmet needs of the #rarecommunity
#StrongerTogether
Today is #rarediseaseday2023 a very important date for both Rare Disease Awareness and Advocacy! There are over 6000 known rare diseases today, affecting 300 million people around the world.
2
This week our long time partners CFRI released their 2021 annual report! The data collected by CFRI is invaluable for optimizing care and patient outcomes, we hope to continue to support them in their advocacy for all those in Ireland with Cystic Fibrosis
#patientregistries
📢OUT NOW: the @CFRegistryIE 2021 annual report!
Check it out on our website & share via: https://cfri.ie/annual-reports/.
We will be positing some key stats over the next few weeks so keep an eye out for that 👀
#CysticFibrosis #CF #Registry #HealthData
Check out Geordirectory's Q4 2022 Residential Building report for trends on Irish residential property https://www.geodirectory.ie/knowledge-centre/reports-blogs/geodirectory-residential-buildings-report-q4-2022
Copyright © 2022 OpenApplications All rights reserved.
OpenApplications Consulting Ltd. Registered in Ireland No. 355595