European Cystic Fibrosis Society PR publish Orphanet Journal Article

HomeWhat We Do Health Data Analytics Patient Registries Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout UsNewsCareersContact Us European Cystic Fibrosis Society PR publish Orphanet Journal Article   “Valuable lessons learned on how to sustain a disease registry” gives an interesting insight…

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RICHE

The RICHE web based platform provides a unique, open, multi-lingual platform for child health research coordination within the European Research Area. Previous to the implementation of this platform researchers were reliant upon disparate research repositories such as MEDLINE/Pubmed, CINHAL and SocINDEX which did not support the narrower requirement specifically around Child Health nor do they…

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