Posts Tagged ‘Rare Disease Registry’
Patient Registry Data and General Data Protection Regulation
GDPR stands for General Data Protection Regulation. First brought into effect in 2018, all businesses have been affected by the EU regulation worldwide. In this article, we will highlight what the regulation entails, key terms/items from the legislation, it’s importance in the modern world, how it measures up against other regulations and finally, how we as a company ensure our compliance.
Read MoreOpenApp supports Metachromatic Leukodystrophy Disease MLD Research
To celebrate Rare Disease Day 2023, which takes place on the 28th of February, we are changing our colours and showing our support for the Metachromatic Leukodystrophy Disease (MLD) Support Association UK. OpenApp have been working MLD support Association UK for many years under our Rare100 CSR scheme, a Corporate Social Responsibility (CSR) initiative run in 2018.
Read MoreIncreasing Patient Communication and Engagement: How the Children’s Tumour Foundation Reaches More Patients Through Multilingual Software
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Increasing Patient Communication and Engagement: How Children’s Tumour Foundation (CTF) are reaching more patients Through Multi-Language Functionality OpenApp are pleased to announce the NF…
Read MoreEuropean Cystic Fibrosis Society Share Their Patient Registry Experience
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us European cystic fibrosis society share their registry experience The European Cystic Fibrosis Society Patient Registry (ECFSPR) is one of OpenApp’s more mature registries having…
Read MoreDigital and Central: Treat rare diseases through digital networking across institutions
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Knowledge sharing at the ‘Centre for Digitisation of Telemedicine’, Germany OpenApp have been invited to speak about the Clinical Patient Management System (CPMS). Launched…
Read MoreOpenApp Featured in Rare Revolution Magazine: Patient Registries – Myth vs Fact
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us OpenApp Featured in Rare Revolution Magazine: Patient Registries – Myth vs Fact 04.02.2021 Clinical Patient Management System for European Reference Networks: A Case Study…
Read MoreCon Hennessy Interview With Rare Revolution Magazine
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Con Hennessy Interview with Rare Revolution Magazine 09.10.2020 We are delighted to announce that our CEO, Con Hennessy, has been featured in esteemed rare…
Read MoreFindaure workshop – ‘Building a Rare Disease Patient Registry’.
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Building a Rare Disease Patient Registry 18.09.2019 Con Hennessy of OpenApp was delighted to be invited to speak at the Findaure workshop – ‘Building…
Read MoreLive Webinar – Best Practices from Multiple Patient Registry Implementations
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us You are Invited to… ERN Population Registry Demonstration & Discussion Here are the Details for This Webinar: Due to the success of the last…
Read MoreOpenApp take home the Excellence in CSR by an SME Award in Corporate Social Responsibility Award 2018
HomeWhat We Do Health Data Analytics Patient Registry Software Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us OpenApp take home the Excellence in CSR by an SME Award in Corporate Social Responsibility Award 2018 OpenApp has been awarded the Excellence in…
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