Real-World Data Collection Enables Evaluating the Safety and Effectiveness of Treatments for Spinal Muscular Atrophy

Logo for SMArtCARE a joint initiative for spinal muscle atrophy

This exciting initiative combines collecting real-world patient data by neurologists, clinicians and patients to enable clinical research and engagement of spinal muscular atrophy patients receiving treatment.

SMArtCARE is a multi-year joint initiative of neurologists, paediatricians, and patients with spinal muscular atrophy (SMA). Spinal muscular atrophy refers to a group of rare genetic diseases resulting in muscle wastage and weakness. Symptom onset can be seen in both children and adults but the most severe form typically presents in children under 18 months old. Until recent treatments survival past childhood was unusual.

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Childrens Tumor Foundation Innovative Patient Reported Patient Registry Platform

Childrens tumor foundation logo

The NF registry is a one of a kind project, where the OpenApp team worked in collaboration with CTF to develop and support a platform that meets their requirements, as a secure and effective tool to empower NF patients and their caregivers. A dedicated registry is the most efficient way to raise awareness/advocate for NF, expand the NF community, and connect to help end NF.

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Patient Registry Data and General Data Protection Regulation

GDPR stands for General Data Protection Regulation. First brought into effect in 2018, all businesses have been affected by the EU regulation worldwide. In this article, we will highlight what the regulation entails, key terms/items from the legislation, it’s importance in the modern world, how it measures up against other regulations and finally, how we as a company ensure our compliance.

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Custom Traffic Incident Management System (TIMs)

Screenshot of dashboard showing Traffic Incident Management System

Egis Road & Tunnel Operations (ERTO) is the operating agent responsible for managing, recording, and reporting all incidents across the over 1,200 kilometres of motorway and dual carriageways in Ireland. They do this at the Motorway Operations Control Centre (MOCC)…

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Right Service – Right Place, Meeting Changing Requirements with Geographic Modelling

photo showing childrens legs of different ages, Charity, childrens charity, Geolocation

HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us   Using Geolocation Data To Assess Changing Population Needs From Anecdotal to Geolocation Decision…

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The Right People in the Right Place

HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Geospatial Needs Analysis = Right Service In The Right Place Historically, new mental health…

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Increasing Patient Communication and Engagement: How the Children’s Tumour Foundation Reaches More Patients Through Multilingual Software

HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us The Children’s Tumor Foundation Patient Registry Goes Multilingual Four Additional Languages OpenApp are pleased…

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AeroMedical, Saving Lives With Location Data

image showing an ambulance in the foreground and a coast guard helicopter in the near distance

HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Multi agency toolkit, incident management and location coordination What is AeroMedical? The Aero-Medical module…

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Clinical Patient Management System for European Reference Networks: A Case Study

HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Clinical Patient Management System for European Reference Networks: A Case Study The Clinical Patient…

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Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation

HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation Data…

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