Patient Registry
Real-World Data Collection Enables Evaluating the Safety and Effectiveness of Treatments for Spinal Muscular Atrophy
This exciting initiative combines collecting real-world patient data by neurologists, clinicians and patients to enable clinical research and engagement of spinal muscular atrophy patients receiving treatment.
SMArtCARE is a multi-year joint initiative of neurologists, paediatricians, and patients with spinal muscular atrophy (SMA). Spinal muscular atrophy refers to a group of rare genetic diseases resulting in muscle wastage and weakness. Symptom onset can be seen in both children and adults but the most severe form typically presents in children under 18 months old. Until recent treatments survival past childhood was unusual.
Read MoreChildrens Tumor Foundation Innovative Patient Reported Patient Registry Platform
The NF registry is a one of a kind project, where the OpenApp team worked in collaboration with CTF to develop and support a platform that meets their requirements, as a secure and effective tool to empower NF patients and their caregivers. A dedicated registry is the most efficient way to raise awareness/advocate for NF, expand the NF community, and connect to help end NF.
Read MoreOpenApp supports Metachromatic Leukodystrophy Disease MLD Research
To celebrate Rare Disease Day 2023, which takes place on the 28th of February, we are changing our colours and showing our support for the Metachromatic Leukodystrophy Disease (MLD) Support Association UK. OpenApp have been working MLD support Association UK for many years under our Rare100 CSR scheme, a Corporate Social Responsibility (CSR) initiative run in 2018.
Read MoreIncreasing Patient Communication and Engagement: How the Children’s Tumour Foundation Reaches More Patients Through Multilingual Software
HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us The Children’s Tumor Foundation Patient Registry Goes Multilingual Four Additional Languages OpenApp are pleased…
Read MoreEuropean Cystic Fibrosis Society Share Their Patient Registry Experience
HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us European cystic fibrosis society share their registry experience The European Cystic Fibrosis Society Patient…
Read MoreOpenApp Takes Part in Epidermolysis Bullosa/ERN Registry Meeting
HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us OpenApp Takes Part in Epidermolysis Bullosa/ERN Registry Meeting OpenApp is delighted to take…
Read MoreOpenApp Inspire and Inform at Health Conferences
HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Clinical Patient Management System for European Reference Networks – OpenApp Connecting with Rare Disease…
Read MoreOpenApp Supports Rare Disease Day – Making the Voice of Rare Disease Heard
HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us OpenApp Supports Rare Disease Day 2016 marks the ninth year that the international…
Read MorePatient Registries in a Digital Europe
HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us Patient Registries in a Digital Europe The PARENT Joint Action recently held its…
Read MoreOpenApp develops European patient registry to support fight against rare disease Tay-Sachs
HomeWhat We Do Health Data Analytics Patient Registry Software Clincally Reported Data (CRD) Product Patient Reported Data (PRD) Product Geospatial Analytics Clinical Patient Management – ERNsOur Work Health Data Analytics in Action Patient Registries in Action Geospatial Analytics in ActionAbout Us CareersInsightsContact Us OpenApp develops European patient registry to support fight against rare disease Tay-Sachs OpenApp, a…
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