News

Catch the latest news relating to OpenApp here. This page is dedicated to Informative blogs covering such topics as the steps to set up a registry, importance of real world data, Resources to find out more about our products and how they can serve you, And our News section so you can see keep up to date with OpenApp’s press coverage

news

How to Use the CPMS for Collaboration

How to Use the CPMS for Collaboration If you are a Co-ordinator or Project Manager of a European Reference Network, you are invited to a virtual familiarisation webinar – How…

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OpenApp to Develop Game-Changing Software in the Fight against Rare Diseases across Europe

Clinical Patient Management System for European Reference Networks: A Case Study Imagine if you are one of the 30 million patients who suffer from a rare disease. What if the…

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Delight as AeroMedical win Aviation Innovation Award

Delight as AeroMedical win Aviation Innovation Award   Congratulations to our client who have picked up an Aviation Innovation Award from the Aviation Industry Awards for AeroMedical, the Locateme 112…

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Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation

Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation Data protection is an issue that we regularly discuss with clinicians, clients, patient registry owners and healthcare…

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Press Release: Laois Ladies Gaelic Football Association and OpenApp agree three year sponsorship deal

Press Release: Laois Ladies Gaelic Football Association and OpenApp agree three year sponsorship deal   Laois LGFA & OpenApp are delighted to announce a new three year sponsorship agreement. The…

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OpenApp Takes Part in Epidermolysis Bullosa/ERN Registry Meeting

OpenApp Takes Part in Epidermolysis Bullosa/ERN Registry Meeting   OpenApp is delighted to take part in an ERN Working Group on Wednesday, 8th June. Representatives from all over Europe will…

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OpenApp Inspire and Inform at Health Conferences

Clinical Patient Management System for European Reference Networks: A Case Study Over the past couple of weeks, some of the team here have been attending, exhibiting and speaking at various…

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OpenApp Supports Rare Disease Day – Making the Voice of Rare Disease Heard

OpenApp Supports Rare Disease Day   2016 marks the ninth year that the international rare disease community celebrates Rare Disease Day. OpenApp is delighted to support this great initiative. On…

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Patient Registries in a Digital Europe

Patient Registries in a Digital Europe   The PARENT Joint Action recently held its final event entitled ‘Patient Registries in a Digital Europe’. They concluded a successful project which has…

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Just over a week to go until the Irish Healthcare Awards @HealthAwardsIrl OpenApps' projects in collaboration with the HSE are in the running for "Best Use of Information Technology" & "Public Health Initiative of the Year" 🤞https://www.openapp.ie/openapp-projects-in-collaboration-with-the-hse-shortlisted-for-irish-health-awards-2022/ #IMTIHA22

Very interesting comments by the FDA RWE panel today at #NORDSummit regarding the pros and cons of using #registry data vs. other sources of data for RWE studies. Registry data can be much higher in quality and accuracy but, at times, less efficient.

Thank you to all of our speakers, attendees, and staff for a great first day of the #NORDSummit! We look forward to learning, networking, and discussing important #RareDisease topics together again tomorrow.

"Partnerships with patients and patient advocacy groups increase #DrugDevelopment success."

- @KreherNerissa (@entradatx) at the #NORDSummit

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