Our Work
Real-World Data Collection Enables Evaluating the Safety and Effectiveness of Treatments for Spinal Muscular Atrophy
This exciting initiative combines collecting real-world patient data by neurologists, clinicians and patients to enable clinical research and engagement of spinal muscular atrophy patients receiving treatment.
SMArtCARE is a multi-year joint initiative of neurologists, paediatricians, and patients with spinal muscular atrophy (SMA). Spinal muscular atrophy refers to a group of rare genetic diseases resulting in muscle wastage and weakness. Symptom onset can be seen in both children and adults but the most severe form typically presents in children under 18 months old. Until recent treatments survival past childhood was unusual.
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Childrens Tumor Foundation Innovative Patient Reported Patient Registry Platform
The NF registry is a one of a kind project, where the OpenApp team worked in collaboration with CTF to develop and support a platform that meets their requirements, as a secure and effective tool to empower NF patients and their caregivers. A dedicated registry is the most efficient way to raise awareness/advocate for NF, expand the NF community, and connect to help end NF.
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Patient Registry Data and General Data Protection Regulation
GDPR stands for General Data Protection Regulation. First brought into effect in 2018, all businesses have been affected by the EU regulation worldwide. In this article, we will highlight what the regulation entails, key terms/items from the legislation, it’s importance in the modern world, how it measures up against other regulations and finally, how we as a company ensure our compliance.
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Custom Traffic Incident Management System (TIMs)
Egis Road & Tunnel Operations (ERTO) is the operating agent responsible for managing, recording, and reporting all incidents across the over 1,200 kilometres of motorway and dual carriageways in Ireland. They do this at the Motorway Operations Control Centre (MOCC)…
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Right Service – Right Place, Meeting Changing Requirements with Geographic Modelling
Using Geolocation Data To Assess Changing Population Needs From Anecdotal to Geolocation Decision Concerned that their intervention was no longer required where service sites were situated, a national charity approached OpenApp to carry out geographic analysis comparing population need with catchment areas of the service sites. The leadership team…
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The Right People in the Right Place
Geospatial Needs Analysis = Right Service In The Right Place Historically, new mental health staff were hired on a national basis and assigned to their nearby Community Healthcare Organization (or CHOs). While additional resources were welcome, this approach ignored community need in regards to the right services provided by the…
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Increasing Patient Communication and Engagement: How the Children’s Tumour Foundation Reaches More Patients Through Multilingual Software
The Children’s Tumor Foundation Patient Registry Goes Multilingual Four Additional Languages OpenApp are pleased to announce the NF Registry by Children’s Tumor Foundation (CTF) goes live in four additional languages: French, Italian, Portuguese and Spanish. This new enhancement provides access to the registry from a more diverse population and expands…
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AeroMedical, Saving Lives With Location Data
Multi agency toolkit, incident management and location coordination What is AeroMedical? The Aero-Medical module is a custom software application developed by OpenApp which is used by the Health Service Executive (HSE) Aero-Medical Services, the Air Corps and the Irish Coast Guard . It consists of user-interface/screens showing real-time availability of…
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Clinical Patient Management System for European Reference Networks: A Case Study
Clinical Patient Management System for European Reference Networks: A Case Study The Clinical Patient Management System (CPMS) is a virtual consultation platform which enables healthcare professionals to present patient cases and collaborate with other healthcare professionals to provide diagnosis, care and treatment across borders. What are the European Reference Networks?…
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Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation
Patient Registry Owners: Key Highlights of new GDPR – General Data Protection Regulation Data protection is an issue that we regularly discuss with clinicians, clients, patient registry owners and healthcare organisations. And it’s with data protection in mind that we put this article together. If you are designing a registry,…
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OpenApp awarded European Cystic Fibrosis Patient Registry
OpenApp awarded European Cystic Fibrosis Patient Registry In March 2013, OpenApp welcomed six members of the European Cystic Fibrosis Patient Registry to our Dublin office to sign and commence the development project for their new ECFSTracker application. The European Cystic Fibrosis Societyy is an international community of scientific and…
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European Cystic Fibrosis Society Tracker goes live!
ECFSTracker goes live! OpenApp’s Cystic Fibrosis customization of our Clinical Insight Platform was officially launched at the European Cystic Fibrosis Society’s Winter Meeting. Held in the pretty city of Leuven, Belgium on Thursday, January 25th. The meeting brought together members from over twenty European Nations.
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